So much in the last few weeks 4-21-23

The last few weeks have been a roller coaster.

The highs were surprising Silas with going to Disney; he didn't believe us at first!

Disney was AMAZING. It was so good to have some normalcy in our life. Zach was a fantastic Disney tour guide and booked us on all the roller coasters, and Silas had a wonderful time.

We were gifted a special tour at Disney that took us around the parks and the rides, our guide, Ellie, was so kind and was an excellent fit for Silas! It was a truly magical experience and one we will never forget.

Zach's blood counts stayed up, meaning he got chemo on Monday. The Low

Unfortunately, low-level-constant nausea returned, and the fatigue was more significant this time. The side effects are cumulative, so it seems like it is a bit of a chase to figure out how to deal with it all.

Updates for the next few weeks.

His next CT scan is scheduled for the evening of May 8th, and we will have a follow-up with his liver surgeon the following day and then the medical oncologist on Wednesday. My feelings about the scan are complicated and hard to communicate. It feels like I am holding my breath and, yet, understanding I have no control over the outcome of the results.

We are still praying for complete healing. We have many people around the world praying for Zach and our family, and we are so grateful. There are times when we are filled with peace and times when it feels so so heavy. We are grieving what our life used to look like. We have hope in Jesus.

Romans 15:13
May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.

-Amber